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Joanna E. Bulkley, PhD

TitleAssistant Investigator, Science Programs, Department of Translational and Applied Genomics
InstitutionKaiser Permanente Northwest
DepartmentCenter for Health Research
Address3800 N. Interstate Avenue
Portland OR 97227
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    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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    PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. Popejoy AB, Ritter DI, Azzariti D, Berg JS, Bulkley JE, Cho M, Gonzaga-Jauregui C, Klein TE, Martschenko DO, Oni-Orisan A, Ramos EM, Rehm HL, Riggs ER, Wright MW, Yudell M, Plon SE, Morales J. Design and implementation of an action plan for justice, equity, diversity, and inclusion within the Clinical Genome Resource. Am J Hum Genet. 2025 Feb 06; 112(2):215-223. PMID: 39793579; PMCID: PMC11866942.
      Citations:    
    2. Banegas MP, O'Keeffe Rosetti M, Gilbert SM, Kwan ML, Leo MC, Danforth KN, Bulkley J, Weinmann S, Yi DK, Lee VS, McMullen C. Comparing direct medical care costs of patients with bladder cancer who received an ileal conduit vs. neobladder in the year following cystectomy. Urol Oncol. 2024 Oct 14. PMID: 39406639.
      Citations:    Fields:    
    3. Feigelson HS, Mittendorf KF, Okuyama S, Porter KM, Bulkley J, Shuster E, Anderson KP, Gilmore MJ, Zepp JM, Kauffman TL, Lindberg NM, Muessig KR, Bellcross C, Ukaegbu C, Syngal S, Leo MC, Wilfond BS, Cancer Health Assessments Reaching Many (CHARM) Study. Feasibility of an electronic patient-facing cancer family history tool in medically underserved populations. Genet Med Open. 2024; 2:101860. PMID: 39669603; PMCID: PMC11613864.
      Citations:    
    4. Pak CM, Gilmore MJ, Bulkley JE, Chakraborty P, Dagan-Rosenfeld O, Foreman AKM, Gollob MH, Jenkins CL, Katz AE, Lee K, Meeks N, O'Daniel JM, Posey JE, Rego SM, Shah N, Steiner RD, Stergachis AB, Subramanian SL, Trotter T, Wallace K, Williams MS, Goddard KAB, Buchanan AH, Manickam K, Powell B, Ezzell Hunter J, ClinGen Resource. Implementing evidence-based assertions of clinical actionability in the context of secondary findings: Updates from the ClinGen Actionability Working Group. Genet Med. 2024 Aug; 26(8):101164. PMID: 38757444; PMCID: PMC11298308.
      Citations:    
    5. Gilmore MJ, Knerr S, Kraft SA, Bulkley JE, Biesecker BB, Feigelson HS, Hunter JE, Jenkins CL, Kauffman TL, Lee SS, Liles EG, Mittendorf KF, Muessig KR, Porter KM, Rolf BA, Rope AF, Zepp JM, Anderson KP, Devine B, Joseph G, Leo MC, Goddard K, Wilfond BS. Improving Care for Marginalized Populations at Risk for Hereditary Cancer Syndromes: Innovations that Expanded Reach in the CHARM Study. Public Health Genomics. 2024; 27(1):16-22. PMID: 38142673.
      Citations:    Fields:    Translation:Humans
    6. Lewis H, Biesecker B, Lee SS, Anderson K, Joseph G, Jenkins CL, Bulkley JE, Leo MC, Goddard KAB, Wilfond BS. Promoting equity, inclusion, and efficiency: A team science approach to the development of authorship guidelines for a multi-disciplinary research team. J Clin Transl Sci. 2023; 7(1):e265. PMID: 38229898; PMCID: PMC10790100.
      Citations:    
    7. Hunter JE, Riddle L, Joseph G, Amendola LM, Gilmore MJ, Zepp JM, Shuster E, Bulkley JE, Muessig KR, Anderson KP, Goddard KAB, Wilfond BS, Leo MC, CHARM study team. Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population. Genet Med. 2023 Jul 05; 25(11):100923. PMID: 37421176.
      Citations: 4     Fields:    Translation:Humans
    8. Okuyama S, White LL, Anderson KP, Medina E, Deutsch S, Ransom C, Jackson P, Kauffman TL, Mittendorf KF, Leo MC, Bulkley JE, Wilfond BS, Goddard KA, Feigelson HS. Evaluating cancer genetic services in a safety net system: overcoming barriers for a lasting impact beyond the CHARM research project. J Community Genet. 2023 Jun; 14(3):329-336. PMID: 37126135; PMCID: PMC10271961.
      Citations:    
    9. Bulkley JE, Varga AM, Dickerson JF, Crawford P, Croen LA, Daida YG, Fombonne E, Hatch B, Lee A, Massolo M, Vaughn K, Lynch FL. A framework for measuring the cost to families of caring for children's health: the design, methodology, and study population of the r-Kids study. BMC Pediatr. 2023 03 20; 23(1):128. PMID: 36941585; PMCID: PMC10025806.
      Citations:    Fields:    Translation:Humans
    10. Lynch FL, Bulkley JE, Varga A, Crawford P, Croen LA, Daida YG, Fombonne E, Hatch B, Massolo M, Dickerson JF. The impact of autism spectrum disorder on parent employment: Results from the r-Kids study. Autism Res. 2022 Dec 22. PMID: 36546608.
      Citations: 4     Fields:    Translation:Humans
    11. Joseph G, Leo MC, Riddle L, Guerra C, Amendola LM, Gilmore MJ, Rolf BA, Dorschner MO, Zepp J, Biesecker BB, Caruncho M, Hunter JE, Keast E, Lewis HS, Duenas D, Kauffman T, Bulkley JE, Anderson KP, Jarvik GP, Goddard KAB, Wilfond BS, CHARM Study Team. An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial. Genet Med. 2022 11; 24(11):2228-2239. PMID: 36053287.
      Citations: 2     Fields:    Translation:Humans
    12. Hunter JE, Jenkins CL, Bulkley JE, Gilmore MJ, Lee K, Pak CM, Wallace KE, Buchanan AH, Foreman AKM, Freed AS, Goehringer S, Manickam K, Meeks NJL, Ramos EM, Shah N, Steiner RD, Subramanian SL, Trotter T, Webber EM, Williams MS, Goddard KAB, Powell BC, ClinGen. ClinGen's Pediatric Actionability Working Group: Clinical actionability of secondary findings from genome-scale sequencing in children and adolescents. Genet Med. 2022 06; 24(6):1328-1335. PMID: 35341655; PMCID: PMC9156571.
      Citations:    
    13. Fombonne E, Croen LA, Bulkley JE, Varga AM, Daida YG, Hatch BA, Dickerson JF, Lynch FL. Emotional and Behavioral Problems in Youth with Autism: High Prevalence and Impact on Functioning. J Dev Behav Pediatr. 2021 Oct 21. PMID: 34693924.
      Citations: 2     Fields:    Translation:Humans
    14. Sharma AJ, Ford ND, Bulkley JE, Jenkins LM, Vesco KK, Williams AM. Use of the Electronic Health Record to Assess Prevalence of Anemia and Iron Deficiency in Pregnancy. J Nutr. 2021 Aug 12. PMID: 34386820.
      Citations: 3     Fields:    Translation:Humans
    15. Bulkley JE, McMullen CK, Rawlings AM, Krouse RS, Francisco MC, Sterrett AT, Burnett-Hartman AN, Pawloski PA, Corley DA, Colwell JC, Feigelson HS. The association of bowel function, participation in life activities, and quality of life in rectal cancer survivors. Qual Life Res. 2021 Jul 12. PMID: 34251589.
      Citations: 3     Fields:    Translation:Humans
    16. Gold R, Bunce A, Davis JV, Nelson JC, Cowburn S, Oakley J, Carney S, Horberg MA, Dearing JW, Melgar G, Bulkley JE, Seabrook J, Cloutier H. "I didn't know you could do that": A Pilot Assessment of EHR Optimization Training. ACI open. 2021; 5(1):e27-e35. PMID: 34938954; PMCID: PMC8691746.
      Citations: 3     
    17. Sharma AJ, Bulkley JE, Stoneburner AB, Dandamudi P, Leo M, Callaghan WM, Vesco KK. Bias in Self-reported Prepregnancy Weight Across Maternal and Clinical Characteristics. Matern Child Health J. 2021 Aug; 25(8):1242-1253. PMID: 33929655.
      Citations: 8     Fields:    Translation:Humans
    18. Vesco KK, Leo MC, Bulkley JE, Beadle KR, Stoneburner AB, Francisco M, Clark AL. Improving management of the genitourinary syndrome of menopause: evaluation of a health system-based, cluster-randomized intervention. Am J Obstet Gynecol. 2021 01; 224(1):62.e1-62.e13. PMID: 32693097.
      Citations:    Fields:    Translation:Humans
    19. Avalos LA, Ferber J, Zerbo O, Naleway AL, Bulkley J, Thompson M, Cragan J, Williams J, Odouli R, Kauffman TL, Ball S, Shifflett P, Li DK. Trivalent inactivated influenza vaccine (IIV3) during pregnancy and six-month infant development. Vaccine. 2020 02 28; 38(10):2326-2332. PMID: 32033850; PMCID: PMC7309563.
      Citations: 1     Fields:    Translation:Humans
    20. Bulkley JE, O'Keeffe-Rosetti M, Wendel CS, Davis JV, Danforth KN, Harrison TN, Kwan ML, Munneke J, Brooks N, Grant M, Leo MC, Banegas M, Weinmann S, McMullen CK. The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy. Qual Life Res. 2020 Apr; 29(4):879-889. PMID: 31811594.
      Citations: 1     Fields:    Translation:Humans
    21. Gold R, Bunce A, Cowburn S, Davis JV, Nelson JC, Nelson CA, Hicks E, Cohen DJ, Horberg MA, Melgar G, Dearing JW, Seabrook J, Mossman N, Bulkley J. Does increased implementation support improve community clinics' guideline-concordant care? Results of a mixed methods, pragmatic comparative effectiveness trial. Implement Sci. 2019 12 05; 14(1):100. PMID: 31805968; PMCID: PMC6894475.
      Citations: 12     Fields:    Translation:Humans
    22. Check DK, Leo MC, Banegas MP, Bulkley JE, Danforth KN, Gilbert SM, Kwan ML, Rosetti MO, McMullen CK. Decision Regret Related to Urinary Diversion Choice among Patients Treated with Cystectomy. J Urol. 2020 01; 203(1):159-163. PMID: 31441673.
      Citations: 13     Fields:    Translation:Humans
    23. Clark A, Leo M, Bulkley J, Beadle K, Vesco K. To the Editor. Menopause. 2019 08; 26(8):940-941. PMID: 31356493.
      Citations:    Fields:    Translation:Humans
    24. Thompson MG, Li DK, Naleway AL, Ferber JR, Henninger ML, Shifflett P, Sokolow LZ, Odouli R, Kauffman TL, Fink RV, Bulkley J, Cragan JD, Bozeman S. Factors associated with recruitment, surveillance participation, and retention in an observational study of pregnant women and influenza. BMC Pregnancy Childbirth. 2019 May 08; 19(1):161. PMID: 31068160; PMCID: PMC6507168.
      Citations: 6     Fields:    Translation:HumansPHPublic Health
    25. Vesco KK, Sharma AJ, Bulkley J, Kimes T, Callaghan WM, England LJ, Hornbrook MC. Association of glucose levels in pregnancy with use of health care services. Diabetes Res Clin Pract. 2019 Jun; 152:146-155. PMID: 31063853; PMCID: PMC6703164.
      Citations: 2     Fields:    Translation:HumansPHPublic Health
    26. Clarke CL, Kushi LH, Chubak J, Pawloski PA, Bulkley JE, Epstein MM, Burnett-Hartman AN, Powell B, Pearce CL, Spencer Feigelson H. Predictors of Long-Term Survival among High-Grade Serous Ovarian Cancer Patients. Cancer Epidemiol Biomarkers Prev. 2019 Apr 09. PMID: 30967418.
      Citations: 11     Fields:    Translation:Humans
    27. Leo MC, Gilbert SM, Wendel CS, Krouse RS, Grant M, Danforth KN, Kwan ML, Harrison TN, Bulkley JE, McMullen CK. Development of a Goal Elicitation Measure to Support Bladder Cancer Patient Choice about Urinary Diversion. J Urol. 2019 Mar 05; 101097JU0000000000000203. PMID: 30835627.
      Citations: 7     Fields:    Translation:Humans
    28. Vesco KK, Beadle K, Stoneburner A, Bulkley J, Leo MC, Clark AL. Clinician knowledge, attitudes, and barriers to management of vulvovaginal atrophy: variations in primary care and gynecology. Menopause. 2019 Mar; 26(3):265-272. PMID: 30153218.
      Citations: 1     Fields:    Translation:Humans
    29. Sun V, Wendel CS, Demark-Wahnefried W, Grant M, McMullen CK, Bulkley JE, Herrinton LJ, Hornbrook MC, Krouse RS. Diet and Behavior Modifications by Long-term Rectal Cancer Survivors to Manage Bowel Dysfunction-Associated Symptoms. Nutr Cancer. 2019; 71(1):89-99. PMID: 30572723.
      Citations: 10     Fields:    Translation:Humans
    30. Kwan ML, Leo MC, Danforth KN, Weinmann S, Lee VS, Munneke JR, Bulkley JE, Rosetti MO, Yi DK, Banegas MP, Wagner MD, Williams SG, Aaronson DS, Grant M, Krouse RS, Gilbert SM, McMullen CK. Factors That Influence Selectionof Urinary Diversion Among Bladder Cancer Patients in 3 Community-based Integrated Health Care Systems. Urology. 2019 Mar; 125:222-229. PMID: 30471370.
      Citations: 1     Fields:    Translation:Humans
    31. McMullen C, Bulkley J, Corley DA, Madrid S, Davis AQ, Hesselbrock R, Kurtilla F, Anderson CK, Arterburn D, Somkin CP, Pawloski PA, Ghai NR, Feigelson HS. Health care improvement and survivorship priorities of colorectal cancer survivors: findings from the PORTAL colorectal cancer cohort survey. Support Care Cancer. 2019 Jan; 27(1):147-156. PMID: 29948396.
      Citations: 12     Fields:    Translation:Humans
    32. Bulkley JE, McMullen CK, Grant M, Wendel C, Hornbrook MC, Krouse RS. Ongoing ostomy self-care challenges of long-term rectal cancer survivors. Support Care Cancer. 2018 Nov; 26(11):3933-3939. PMID: 29845420.
      Citations: 16     Fields:    Translation:Humans
    33. Hornbrook MC, Grant M, Wendel C, Bulkley JE, Mcmullen CK, Altschuler A, Temple LK, Herrinton LJ, Krouse RS. Rectal Cancer Survivors' Participation in Productive Activities. Perm J. 2018; 22:17-022. PMID: 29236653.
      Citations: 4     Fields:    Translation:Humans
    34. Alavi M, Wendel CS, Krouse RS, Temple L, Hornbrook MC, Bulkley JE, McMullen CK, Grant M, Herrinton LJ. Erratum to: Predictors of Bowel Function in Long-term Rectal Cancer Survivors with Anastomosis. Ann Surg Oncol. 2017 12; 24(Suppl 3):694. PMID: 28815447.
      Citations:    Fields:    
    35. Alavi M, Wendel CS, Krouse RS, Temple L, Hornbrook MC, Bulkley JE, McMullen CK, Grant M, Herrinton LJ. Predictors of Bowel Function in Long-term Rectal Cancer Survivors with Anastomosis. Ann Surg Oncol. 2017 Nov; 24(12):3596-3603. PMID: 28785900.
      Citations: 9     Fields:    Translation:Humans
    36. Krouse RS, Wendel CS, Garcia DO, Grant M, Temple LKF, Going SB, Hornbrook MC, Bulkley JE, McMullen CK, Herrinton LJ. Physical activity, bowel function, and quality of life among rectal cancer survivors. Qual Life Res. 2017 11; 26(11):3131-3142. PMID: 28677077.
      Citations: 10     Fields:    Translation:Humans
    37. Mcmullen C, Liu L, Bulkley JE, Hornbrook MC, Wendel C, Grant M, Altschuler A, Temple LK, Krouse RS, Herrinton L. Participation in Activities Associated With Quality of Life for Long-Term Survivors of Rectal Cancer. Perm J. 2017; 21:16-011. PMID: 28241904.
      Citations: 4     Fields:    Translation:Humans
    38. McMullen CK, Bulkley JE, Altschuler A, Wendel CS, Grant M, Hornbrook MC, Sun V, Krouse RS. Greatest Challenges of Rectal Cancer Survivors: Results of a Population-Based Survey. Dis Colon Rectum. 2016 Nov; 59(11):1019-1027. PMID: 27749476.
      Citations: 26     Fields:    Translation:Humans
    39. Sharma AJ, Vesco KK, Bulkley J, Callaghan WM, Bruce FC, Staab J, Hornbrook MC, Berg CJ. Rate of Second and Third Trimester Weight Gain and Preterm Delivery Among Underweight and Normal Weight Women. Matern Child Health J. 2016 10; 20(10):2030-6. PMID: 27329188.
      Citations: 3     Fields:    Translation:Humans
    40. Sun V, Grant M, Wendel CS, McMullen CK, Bulkley JE, Herrinton LJ, Hornbrook MC, Krouse RS. Sexual Function and Health-Related Quality of Life in Long-Term Rectal Cancer Survivors. J Sex Med. 2016 07; 13(7):1071-9. PMID: 27318020.
      Citations: 26     Fields:    Translation:Humans
    41. Herrinton LJ, Altschuler A, McMullen CK, Bulkley JE, Hornbrook MC, Sun V, Wendel CS, Grant M, Baldwin CM, Demark-Wahnefried W, Temple LK, Krouse RS. Conversations for providers caring for patients with rectal cancer: Comparison of long-term patient-centered outcomes for patients with low rectal cancer facing ostomy or sphincter-sparing surgery. CA Cancer J Clin. 2016 09; 66(5):387-97. PMID: 26999757.
      Citations: 8     Fields:    Translation:Humans
    42. England LJ, Bulkley JE, Pazol K, Bruce FC, Kimes T, Berg CJ, Hornbrook MC, Callaghan WM. Investigating Implausible Gestational Age and High Birthweight Combinations. Paediatr Perinat Epidemiol. 2015 Nov; 29(6):562-6. PMID: 26367856.
      Citations: 1     Fields:    Translation:Humans
    43. Chongpison Y, Hornbrook MC, Harris RB, Herrinton LJ, Gerald JK, Grant M, Bulkley JE, Wendel CS, Krouse RS. Self-reported depression and perceived financial burden among long-term rectal cancer survivors. Psychooncology. 2016 11; 25(11):1350-1356. PMID: 26365584.
      Citations: 32     Fields:    Translation:Humans
    44. Sharma AJ, Vesco KK, Bulkley J, Callaghan WM, Bruce FC, Staab J, Hornbrook MC, Berg CJ. Associations of Gestational Weight Gain with Preterm Birth among Underweight and Normal Weight Women. Matern Child Health J. 2015 Sep; 19(9):2066-73. PMID: 25652068.
      Citations: 16     Fields:    Translation:Humans
    45. Sun V, Grant M, Wendel CS, McMullen CK, Bulkley JE, Altschuler A, Ramirez M, Baldwin CM, Herrinton LJ, Hornbrook MC, Krouse RS. Dietary and Behavioral Adjustments to Manage Bowel Dysfunction After Surgery in Long-Term Colorectal Cancer Survivors. Ann Surg Oncol. 2015 Dec; 22(13):4317-24. PMID: 26159443.
      Citations: 29     Fields:    Translation:Humans
    46. Wendel CS, Grant M, Herrinton L, Temple LK, Hornbrook MC, McMullen CK, Bulkley JE, Altschuler A, Krouse RS. Reliability and validity of a survey to measure bowel function and quality of life in long-term rectal cancer survivors. Qual Life Res. 2014 Dec; 23(10):2831-40. PMID: 24890826.
      Citations: 27     Fields:    Translation:Humans
    47. Dietz PM, Rizzo JH, England LJ, Callaghan WM, Vesco KK, Bruce FC, Bulkley JE, Sharma AJ, Hornbrook MC. Health care utilization in the first year of life among small- and large- for-gestational age term infants. Matern Child Health J. 2013 Aug; 17(6):1016-24. PMID: 22855007.
      Citations: 7     Fields:    Translation:Humans
    48. Bulkley J, McMullen CK, Hornbrook MC, Grant M, Altschuler A, Wendel CS, Krouse RS. Spiritual well-being in long-term colorectal cancer survivors with ostomies. Psychooncology. 2013 Nov; 22(11):2513-21. PMID: 23749460.
      Citations: 11     Fields:    Translation:Humans
    49. Farr SL, Dietz PM, Rizzo JH, Vesco KK, Callaghan WM, Bruce FC, Bulkley JE, Hornbrook MC, Berg CJ. Health care utilisation in the first year of life among infants of mothers with perinatal depression or anxiety. Paediatr Perinat Epidemiol. 2013 Jan; 27(1):81-8. PMID: 23215715.
      Citations: 24     Fields:    Translation:Humans
    50. Skeps R, McMullen CK, Wendel CS, Bulkley J, Grant M, Mohler J, Hornbrook MC, Krouse RS, Herrinton LJ. Changes in body mass index and stoma related problems in the elderly. J Geriatr Oncol. 2013 Jan; 4(1):84-9. PMID: 24071496.
      Citations: 4     Fields:    Translation:Humans
    51. Bruce FC, Berg CJ, Joski PJ, Roblin DW, Callaghan WM, Bulkley JE, Bachman DJ, Hornbrook MC. Extent of maternal morbidity in a managed care population in georgia. Paediatr Perinat Epidemiol. 2012 Nov; 26(6):497-505. PMID: 23061685.
      Citations: 6     Fields:    Translation:Humans
    52. Vesco KK, Dietz PM, Bulkley J, Bruce FC, Callaghan WM, England L, Kimes T, Bachman DJ, Hartinger KJ, Hornbrook MC. A system-based intervention to improve postpartum diabetes screening among women with gestational diabetes. Am J Obstet Gynecol. 2012 Oct; 207(4):283.e1-6. PMID: 23021689.
      Citations: 31     Fields:    Translation:Humans
    53. Dietz PM, Rizzo JH, England LJ, Callaghan WM, Vesco KK, Bruce FC, Bulkley JE, Sharma AJ, Hornbrook MC. Early term delivery and health care utilization in the first year of life. J Pediatr. 2012 Aug; 161(2):234-9.e1. PMID: 22421263.
      Citations: 15     Fields:    Translation:Humans
    54. Goddard KA, Weinmann S, Richert-Boe K, Chen C, Bulkley J, Wax C. HER2 evaluation and its impact on breast cancer treatment decisions. Public Health Genomics. 2012; 15(1):1-10. PMID: 21540562.
      Citations: 19     Fields:    Translation:Humans
    55. Deater-Deckard K, Bulkley J. Parent concerns in long-term follow-up. Semin Neonatol. 2000 May; 5(2):171-8. PMID: 10859711.
      Citations:    
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